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Resources for Parents,
Family and Friends

Below are the resources we have collected as part of our journey as parents of a child with a limb difference. Please feel free to contact me personally at lamelle@journeymama.net if I can help in any way.

Online Support for Limb Differences (anomalies of the legs, arms, hands, or feet)

  • Visit www.limbdifferences.org, a "home base" for online support for limb differences (anomalies of the legs, arms, hands or feet)

Resources for Fibular Hemimelia

Resources for Limb Lengthening

  • International Center for Limb Lengthening, Rubin Institute for Advanced Orthopedics at Sinai Hospital, Baltimore, MD

  • Parents of Fixator Kids is a Yahoo group for parents of kids using external fixators. Remember to read the archives.

  • Limb Lengthening: A Dad's Journal is a personal essay written by a father on a limb lengthening list. He agreed to share it anonymously for Journeymama readers. I found it tremendously moving and inspiring (and somewhat terrifying) as I prepared for my daughter's surgery.

Resources for Amputation

Books

  • www.disABILITIESBOOKS.com houses an excellent online catalog of books of interest to parents of children with disabilities, family members, and professionals who serve children and their families
   
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