Below are the resources we have collected as part of our journey as parents of a child with a limb difference. Please feel free to contact me personally at lamelle@journeymama.net if I can help in any way.
Online Support for Limb Differences (anomalies of the legs, arms, hands, or feet)
Visit www.limbdifferences.org, a "home base" for online support for limb differences (anomalies of the legs, arms, hands or feet)
Resources for Fibular Hemimelia
If your child has fibular hemimelia, join the Yahoo group for fibular hemimelia. Then read the archives - a wealth of information at your fingertips.
Parents of Fixator Kids is a Yahoo group for parents of kids using external fixators. Remember to read the archives.
Limb Lengthening: A Dad's Journal is a personal essay written by a father on a limb lengthening list. He agreed to share it anonymously for Journeymama readers. I found it tremendously moving and inspiring (and somewhat terrifying) as I prepared for my daughter's surgery.
www.disABILITIESBOOKS.com houses an excellent online catalog of books of interest to parents of children with disabilities, family members, and professionals who serve children and their families